https://arolstar52-zhtest.hf.space/index.php?action=history&feed=atom&title=Orphanet 2026-07-16T08:30:26Z 在这个wiki上该页的修订历史 MediaWiki 1.43.9 https://arolstar52-zhtest.hf.space/index.php?title=Orphanet&diff=2963596&oldid=prev 2024-12-27T03:05:39Z

<p>修正中國用語</p> <p><b>新页面</b></p><div>&#039;&#039;&#039;Orphanet&#039;&#039;&#039; 是一個提供[[孤兒藥]]物及[[罕見疾病]]資訊的歐洲網站。&lt;ref name=&quot;pmid18026888&quot;&gt;{{cite journal |first1=S |last1=Aymé |first2=J |last2=Schmidtke |title=Networking for rare diseases: a necessity for Europe |journal=Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz |volume=50 |issue=12 |pages=1477–83 |date=December 2007 |pmid=18026888 |doi=10.1007/s00103-007-0381-9}}&lt;/ref&gt;該網站包含醫生和病人等之資訊。其行政辦公室位於[[巴黎]]，其官方[[醫學期刊]](Medical journal)是由[[BioMed Central]]代理所出版的&#039;&#039;{{le|Orphanet罕見疾病期刊|Orphanet Journal of Rare Diseases}}&#039;&#039;。<br /> <br /> 該網站是由{{le|Inserm|Inserm}}所領導的35個國家的學術機構聯盟進行管理的。&lt;ref&gt;{{Cite web|url=http://www.orpha.net/consor/cgi-bin/Education_AboutOrphanet.php?lng=EN|title=Orphanet: About Orphanet|last=|first=|date=|website=www.orpha.net|language=en|archive-url=https://web.archive.org/web/20080415132859/http://www.orpha.net/consor/cgi-bin/Education_AboutOrphanet.php?lng=EN|archive-date=2008-04-15|dead-url=no|access-date=2017-02-20}}&lt;/ref&gt;<br /> <br /> ==註釋==<br /> {{reflist}}<br /> <br /> ==外部連結==<br /> * {{Official website|http://www.orpha.net/}}<br /> {{医学在线知识平台}}<br /> [[Category:生物學資料庫]]<br /> [[Category:医学网站]]</div>

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